Leptomeningeal Glioblastoma Diagnosis Updates So Far

On the night of August 13th 2024 our dad, Clark Young, went to the ER because he was feeling confused and was dizzy. He was also having vision changes in his left eye and pain from his eye down his neck. We found out he has a Glioblastoma brain tumor in the Parietal Lobe of his brain. He had a brain biopsy on August 19th for further testing where we found out he is un-methylated so the chemo treatments and radiation they use for this are even less effective (when it already isn't a cure and has bad effects).

After doing extensive research we were hopeful to get into some clinical trials with CAR-T immunotherapy until we found out he also has Leptomeningeal Disease which means this is spreading throughout the brain and spine in the lining. They are telling us this is a rare thing and it disqualifies him from most of the promising studies. It also makes it so instead of them being able to only target the tumor with radiation, they will need to radiate his entire brain and spine which causes even worse and irreversible side effects. Again, these treatments don't cure it, they only prolong life some.

We are now trying to find clinical trials for both Glioblastoma and  Leptomeningeal Disease, immunotherapy options, and other more natural options to help him that are not covered by insurance, as the standard treatments would be. Any info anyone has about these treatments or any donations to help cover the cost of these treatments is greatly appreciated.

I will keep updating you here as we get more info.

Much love to you all!

Donation options go to his wife Frances Young:

Zelle/Apple Pay :: 520-808-0081

Venmo :: Fran-Young-12

Paypal :: fatfreestuff@yahoo.com